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TIPS FOR USING THE DATA
How to interpret and use the data accurately
DATA SOURCES
Where the data comes from: full sources and methods.
State-at-a-Glance Coverage and Financing Charts
Entire US
Show Full Data Sources on This Chart
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DEMOGRAPHICS
Child Population
US
Number of children
78,170,600
Children as a percentage of the total population
25%
Source
: Kaiser Family Foundation (2012)
Tip
: Total child population is the backdrop for understanding the size of the CYSHCN population.
Race/Ethnicity
US
Percentage of children, by race/ethnicity
White alone
53.5%
Black/African American alone
14.0%
Hispanic/Latino alone
26.9%
American Indian/Alaska Native alone
0.9%
Asian alone
4.3%
Native Hawaiian/Other Pacific Islander alone
0.2%
Another race/ethnicity alone
0.3%
2 or more races/ethnicities
3.8%
Source
: U.S. Census Bureau (2010)
Tip
: The Chartbook uses broad race/ethnicity categories, for example, grouping African-American and other Black children, to avoid creating subgroups too small for statistical calculations. By combining smaller groups, we make it feasible to compare those groups statistically to others in the population.
Household
US
Among households with children, percentage of households with one, two, or three or more adults
1 adult
14.9 %
2 adults
63.4 %
3 or more adults
21.7%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Urban/Rural
US
Percentage of population living in urban areas
84%
Source
: Kaiser Family Foundation (2012)
Special Health Care Needs
US
Percentage of children with reported special health care needs, by age group
0-5
9.3%
6-11
17.7%
12-17
18.4%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of children with reported special health care needs, by sex
Male
17.4%
Female
12.7%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of children with reported special health care needs, by race/ethnicity
Hispanic
11.2%
White, non-Hispanic
16.3%
Black, non-Hispanic
17.5%
Other, non-Hispanic
13.6%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of children with reported special health care needs, by primary household language
Hispanic child/ Spanish language household
8.2%
Hispanic child/ English language household
14.4%
Non-Hispanic child
16.2%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of children with reported special health care needs, by household income
0-99% FPL
16.0%
100-199% FPL
15.4%
200-399% FPL
14.5%
400% or more FPL
14.7%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of households with one or more children with special health care needs
23.0%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: *Estimates based on sample sizes too small to meet standards for reliability or precision.
These figures reflect parent responses to “screener” questions about the child’s use of or need for services.
Low Birth Weight
US
Percentage of live births that are low birth weight
8.2%
Source
: U.S. Dept. of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2012)
Tip
: Low birth weight is defined as newborn weight below 2500 grams (about 5 lbs).
Special Education
US
Percentage of public school students enrolled in Special Education
13.1
Source
: U.S. Dept. of Education (2011)
ECONOMICS
Income
US
Median annual household income
$50,443
Source
: Kaiser Family Foundation (2009-2011)
Percentage of children in families with income below 200% of the federal poverty level
42.4%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CSHCN in families with income below 200% of the federal poverty level
44.3%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Unemployment
US
Unemployment rate
7.3%
Source
: Kaiser Family Foundation (2013)
Financial Impact of Caregiving
US
Percentage of families who report they have reduced work hours or stopped working to care for their CYSHCN
25.0%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Employer Size
US
Distribution of employers, by number of employees
<20
89.8%
20-99
8.5%
100+
1.7%
Source
: U.S. Census Bureau (2011)
Employer-Sponsored Health Insurance
US
Percentage of private sector employers offering health insurance
50.1%
Source
: Kaiser Family Foundation (2012)
Percentage of private sector employers offering health insurance, by number of employees
<50
35.2%
50+
95.9%
Source
: Kaiser Family Foundation (2012)
Medicaid Eligibility
US
Maximum allowed income for Medicaid enrollment, as a percentage of the federal poverty level, compared to the federal minimum requirement
Pregnant women
Required minimum: 185%
Children, aged 0-1
Required minimum: 133%
Children, aged 1-5
Required minimum: 133%
Children, aged 6-18
Required minimum: 133%
Source
: Kaiser Family Foundation (2013)
Tip
: Although they must meet or exceed a federally set standard, states have substantial discretion in setting income limits on Medicaid eligibility. States with higher maximum income limits cover a broader population.
Federal Match for Medicaid
US
Federal Medical Assistance Percentage (FMAP)
50.00%
Source
: Kaiser Family Foundation (2013)
Tip
: The federal government shares the cost of Medicaid with states. The federal share, or match, is determined by a formula in which the key variable is personal income.
Education Expenditures
US
Combined local, state and federal per pupil education expenditures
$11,339
Source
: U.S. Dept. of Education (2011)
Tip
: Per pupil education expenditures include average combined local, state and federal education funds per pupil for all children in a state.
Federal per pupil IDEA expenditures for children aged 3-21 in Special Education
$1,774
Source
: U.S. Dept. of Education, Office of Special Education and Rehabilitative Services (2010)
CHILD HEALTH SERVICES
Health Care
US
Number of children’s hospitals
234
Source
: National Association of Children’s Hospitals and Related Institutions
Tip
: The source of this data is a membership organization. Non-member hospitals are not reflected in the total number of children’s hospitals per state.
Number of pediatricians per 1,000 children
1.05
Source
: American Board of Medical Specialties (2012)
Number of family practitioners
82,387
Source
: American Board of Medical Specialties (2012)
Number of child and adolescent psychiatrists per 1,000 children
0.06
Source
: American Board of Medical Specialties (2012)
Early Intervention Eligibility
US
Eligibility for Early Intervention services includes infants and toddlers “at risk” of developmental delay
Yes=6
Source
: Early Childhood Technical Assistance Center (2012)
Tip
: Within federal guidelines, states have broad discretion in setting Early Intervention eligibility.
Mental Health
US
Number of children served by state mental health authority, per 1,000 children
Aged 0-12
21.4
Aged 13-17
41.2
Aged 18-20
26.0
Source
: SAMHSA National Mental Health Information Center (2012)
Percentage of CSHCN with emotional, behavioral or developmental issues whose families have adequate private and/or public insurance to pay for the services they need
65.7%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Oral Health
US
Percentage of children receiving preventive dental care in the past year
77.2%
Source
: National Survey of Children’s Health (2011-2012)
Percentage of CSHCN receiving preventive dental care in the past year
83.1%
Source
: National Survey of Children’s Health (2011-2012)
Percentage of children with teeth in excellent or very good condition
71.3%
Source
: National Survey of Children’s Health (2011-2012)
Percentage of CSHCN with teeth in excellent or very good condition
64.9%
Source
: National Survey of Children’s Health (2011-2012)
Foster Care
US
Number of children in foster care
397,122
Source
: U.S. Dept. of Health and Human Services, Administration for Children and Families, Children’s Bureau (2013)
Percentage of children in foster care
0.5%
Source
: U.S. Dept. of Health and Human Services, Administration for Children and Families, Children’s Bureau (2013)
FACTORS INFLUENCING HEALTH INSURANCE COVERAGE
Uninsured
US
Percentage of children without health insurance at some point in the past year
11.3%
Source
: National Survey of Children’s Health (2011-2012)
Tip
: The percent of
all children without coverage
at any point in the year may be the most important indicator we have of social investment in child health. Across states, this figure captures differences in parental employment status and associated private coverage levels, as well as state funding for public coverage of children through Medicaid and CHIP.
Percentage of CYSHCN without health insurance at some point in the past year, by age groups
0-5 years
9.1%
6-11 years
9.2%
12-17 years
9.4%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN without health insurance at some point in the past year, by sex
Male
9.5%
Female
8.9%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN without health insurance at some point in the past year, by race/ethnicity
Hispanic
15.9%
White non-Hispanic
7.3%
Black non-Hispanic
9.9%
Other non-Hispanic
9.4%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN without health insurance at some point in the past year, by primary household language
Hispanic child/Spanish language household
22.2%
Hispanic child/English language household
12.6%
Non-Hispanic child
8.0%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN without health insurance at some point in the past year, by household income
0-99% FPL
14.2%
100-199% FPL
14.1%
200-399% FPL
8.5%
400% or more FPL
2.3%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN without health insurance at some point in the past year, by number of functional difficulties
No difficulties
4.4%
1 difficulty
5.9%
2 difficulties
9.0%
3 difficulties
9.9%
4 or more difficulties
11.7%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN without health insurance at some point in the past year
9.3%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: *Estimates based on sample sizes too small to meet standards for reliability or precision.
Underinsured
US
Percentage of children with inadequate health care coverage
23.5%
Source
: National Survey of Children’s Health (2011-2012)
Percentage of CYSHCN with inadequate health care coverage, by age groups
0-5 years
31.6%
6-11 years
34.6%
12-17 years
35.5%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with inadequate health care coverage, by sex
Male
34.5%
Female
34.1%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with inadequate health care coverage, by race/ethnicity
Hispanic
37.9%
White non-Hispanic
33.0%
Black non-Hispanic
35.9%
Other non-Hispanic
33.9%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with inadequate health care coverage, by primary household language
Hispanic child/Spanish language household
39.9%
Hispanic child/English language household
37.0%
Non-Hispanic child
33.6%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with inadequate health care coverage, by household income
0-99% FPL
34.3%
100-199% FPL
34.3%
200-399% FPL
36.9%
400% or more FPL
31.9%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with inadequate health care coverage, by number of functional difficulties
No difficulties
23.2%
1 difficulty
26.5%
2 difficulties
30.7%
3 difficulties
32.6%
4 or more difficulties
41.6%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with inadequate health care coverage
34.3%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Relatively few CYSHCN lack insurance completely. However, private coverage is often too limited to meet their health needs, Thus, in many states, underinsurance is the major financial barrier to health care access for CYSHCN.
*Estimates based on sample sizes too small to meet standards for reliability or precision.
Private Insurance Coverage
US
Percentage of children with private health insurance coverage
57.4%
Source
: National Survey of Children’s Health (2011-2012)
Percentage of CYSHCN with private health insurance coverage, by age groups
0-5 years
46.1%
6-11 years
51.4%
12-17 years
56.6%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with private health insurance coverage, by sex
Male
51.9%
Female
53.0%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with private health insurance coverage, by race/ethnicity
Hispanic
35.7%
White non-Hispanic
63.4%
Black non-Hispanic
30.6%
Other non-Hispanic
49.8%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with private health insurance coverage, by primary household language
Hispanic child/Spanish language household
15.9%
Hispanic child/English language household
46.1%
Non-Hispanic child
55.7%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with private health insurance coverage, by household income
0-99% FPL
5.9%
100-199% FPL
27.7%
200-399% FPL
71.8%
400% or more FPL
90.2%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with private health insurance coverage, by number of functional difficulties
No difficulties
74.7%
1 difficulty
68.9%
2 difficulties
61.6%
3 difficulties
52.2%
4 or more difficulties
38.2%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with private health insurance coverage
52.4%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: *Estimates based on sample sizes too small to meet standards for reliability or precision.
Public Coverage: Medicaid, CHIP and SSI
US
Number of children enrolled in Medicaid
30,746,220
Percentage of Medicaid enrollees who are children
49%
Source
: Kaiser Family Foundation (2012)
Percentage of children enrolled in Medicaid or CHIP
37.1%
Source
: National Survey of Children’s Health (2011-2012)
Percentage of CYSHCN enrolled in Medicaid or CHIP, by age groups
0-5 years
41.2%
6-11 years
36.9%
12-17 years
32.1%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN enrolled in Medicaid or CHIP, by sex
Male
36.1%
Female
35.5%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN enrolled in Medicaid or CHIP, by race/ethnicity
Hispanic
46.4%
White non-Hispanic
27.0%
Black non-Hispanic
56.0%
Other non-Hispanic
37.8%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN enrolled in Medicaid or CHIP, by primary household language
Hispanic child/English language household
40.6%
Non-Hispanic child
33.7%
Hispanic child/Spanish language household
57.5%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN enrolled in Medicaid or CHIP, by household income
0-99% FPL
77.9%
100-199% FPL
55.9%
200-399% FPL
17.2%
400% or more FPL
4.5%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN enrolled in Medicaid or CHIP, by number of functional difficulties
No difficulties
19.5%
1 difficulty
24.0%
2 difficulties
29.0%*
3 difficulties
36.6%
4 or more difficulties
45.9%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN enrolled in Medicaid or CHIP
35.9%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: *Estimates based on sample sizes too small to meet standards for reliability or precision.
Maximum allowed income for CHIP eligibility as a percentage of the FPL
N/A
Source
: Kaiser Family Foundation (2013)
Number of children enrolled in CHIP
8,148,397
Source
: Kaiser Family Foundation (2012)
Percentage of children enrolled in CHIP
10.4%
Source
: Kaiser Family Foundation (2012)
Number of children enrolled in Supplemental Security Income (SSI)
1,277,122
Source
: Kaiser Family Foundation (2011)
Percentage of children enrolled in Supplemental Security Income (SSI)
1.7%
Source
: Kaiser Family Foundation (2011) and U.S. Census Bureau (2010)
TEFRA Medicaid state plan option/Katie Beckett waiver for children
Yes=23
Source
: American Journal of Law and Medicine (2011)
Tip
: The TEFRA state plan option allows states to enroll CYSHCN who require the equivalent of an institutional level of care (pediatric nursing home, hospital, intermediate care facility for persons with intellectual disabilities) in Medicaid even if family income exceeds Medicaid limits. TEFRA programs are sometimes called Katie Becket waivers. These waivers also deemed parental income and served a similar population of children with the same intention of providing home and community-based services rather than institutional placement but historically preceded the TEFRA state plan option. For more information about this indicator, see the Catalyst Center article “Making It Possible to Care for Children with Significant Disabilities at Home” at
http://hdwg.org/catalyst/tefraindicator
.
Premium Assistance Programs
Yes=38
Source
: Employee Benefits Security Administration (2014)
Tip
: In premium assistance programs, a state agency pays all or part of the premiums for an eligible family who has access to private health insurance coverage.
Dual Public and Private Coverage
US
Percentage of CYSHCN with a combination of public and private health insurance, by sex
Male
8.4%
Female
7.8%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with a combination of public and private health insurance, by race/ethnicity
Hispanic
11.1%
White non-Hispanic
6.9%
Black non-Hispanic
9.7%
Other non-Hispanic
3.7%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with a combination of public and private health insurance, by age groups
0-5 years
9.7%
6-11 years
8.4%
12-17 years
7.2%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with a combination of public and private health insurance, by household income
0-99% FPL
11.1%
100-199% FPL
11.1%
200-399% FPL
7.1%
400% or more FPL
4.6%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with a combination of public and private health insurance, by number of functional difficulties
No difficulties
4.3%
1 difficulty
4.7%
2 difficulties
5.9%
3 difficulties
7.3%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with a combination of public and private health insurance, by primary household language
Hispanic child/English language household
8.1%
Non-Hispanic child
7.6%
Hispanic child/Spanish language household
16.7%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with a combination of public and private health insurance
8.2%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Dual coverage is an option in states which permit privately insured families to enroll their children in Medicaid in order to receive supplemental coverage, sometimes known as “wrap-around” coverage. This type of secondary Medicaid enrollment may be offered free or through the payment of premiums based on a sliding scale. Dual coverage helps address underinsurance, which is a significant problem for many privately insured CYSHCN whose coverage is too limited to meet their health needs.
*Estimates based on sample sizes too small to meet standards for reliability or precision.
Health Care Reform
US
Exchange overview
Exchange decision
State run=17; State/fed partnership=7; Fed run=27
Type of exchange
N/A
Source
: Kaiser Family Foundation (2014)
Tip
: The term Health Insurance “Exchange” is also used interchangeably with Health Insurance “Marketplace.”
Recommended benchmark plan
N/A
Source
: Center for Consumer Information and Insurance Oversight (2012)
Plan type
N/A
Source
: National Academy for State Health Policy (2014)
Approved Section 2703 Health Home State Plan Amendments (SPAs)
Approved SPA
Yes=12
Target population
N/A
Geographic area
N/A
Source
: Kaiser Family Foundation (2014)
State Mandated Insurance Benefits (for private ins
US
Autism
Yes=35
Source
: Autism Speaks (2014)
Bone Marrow Transplants
Yes=9
Cleft Palate
Yes=17
Congenital Bleeding Disorders
Yes=3
Dental Anesthesia
Yes=31
Diabetes Self-Management
Yes=38
Diabetic Supplies
Yes=47
Source
: Center for Affordable Health Insurance (2010)
Early Intervention
Yes=9
Source
: Catalyst Center communications with state agency contacts and review of state statutes (2011)
Emergency Services
Yes=45
Hearing Aids
Yes=17
Home Health Care
Yes=20
Hospice Care
Yes=12
Kidney Disease Treatment
Yes=2
Mental Health, General
Yes=42
Source
: Center for Affordable Health Insurance (2010)
Mental Health Parity
Yes=23
Source
: National Conference of State Legislatures (2014)
Neurodevelopment Therapy
Yes=1
Newborn Hearing Screening
Yes=18
Newborn Sickle-Cell Testing
Yes=4
PKU/Formula
Yes=33
Prescription Drugs
Yes=4
Rehabilitation Services
Yes=6
Telemedicine
Yes=9
Source
: Center for Affordable Health Insurance (2010)
Tip
: For updated information on each state’s specific mandated benefits, go to
http://www.cms.gov/cciio/resources/data-resources/ehb.html
Mandated benefits are benefits that private insurers must cover, by law, in a given state. Note that self-insured health plans are exempt from such mandates. For a more in-depth discussion of state mandated benefits for CYSHCN, see the Catalyst Center website at
http://www.hdwg.org/catalyst/close-benefit-gaps/mandated-benefits
Catastrophic Coverage
US
High-Risk Pool Programs
Yes=34
Source
: Kaiser Family Foundation (2011)
EXPERIENCE WITH THE SYSTEM OF CARE FOR CSHCN
Federal MCHB Core Outcomes for CSHCN
US
Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by primary household language
Hispanic child/English language household
65.6%
Non-Hispanic child
71.6%
Hispanic child/Spanish language household
59.5%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive (outcome successfully achieved).
Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by household income
0-99% FPL
61.8%
100-199% FPL
67.3%
200-399% FPL
72.6%
400% or more FPL
77.2%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive (outcome successfully achieved).
Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by number of functional difficulties
No difficulties
84.8%
1 difficulty
79.6%
2 difficulties
76.4%
3 difficulties
73.2%
4 or more difficulties
60.8%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive (outcome successfully achieved).
Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by sex
Male
69.5%
Female
71.5%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive (outcome successfully achieved).
Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by race/ethnicity
Hispanic
63.5%
White non-Hispanic
74.2%
Black non-Hispanic
64.7%
Other non-Hispanic
66.8%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive (outcome successfully achieved).
Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health
70.3%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive.
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by age groups
0-5 years
44.2%
6-11 years
42.1%
12-17 years
43.1%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by sex
Male
42.6%
Female
43.6%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by race/ethnicity
Hispanic
33.2%
White non-Hispanic
48.8%
Black non-Hispanic
33.5%
Other non-Hispanic
39.1%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by primary household language
Hispanic child/English language household
37.4%
Non-Hispanic child
44.9%
Hispanic child/Spanish language household
24.9%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by household income
0-99% FPL
30.9%
100-199% FPL
37.5%
200-399% FPL
47.4%
400% or more FPL
52.2%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by number of functional difficulties
No difficulties
64.1%
1 difficulty
58.3%
2 difficulties
53.3%
3 difficulties
43.2%
4 or more difficulties
28.9%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home
43.0%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home.
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by age groups
0-5 years
63.2%
6-11 years
60.3%
12-17 years
59.4%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by sex
Male
60.2%
Female
61.0%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by race/ethnicity
Hispanic
53.6%
White non-Hispanic
62.8%
Black non-Hispanic
58.9%
Other non-Hispanic
61.5%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by primary household language
Hispanic child/Spanish language household
48.8%
Hispanic child/English language household
56.1%
Non-Hispanic child
61.9%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by household income
0-99% FPL
57.8%
100-199% FPL
58.0%
200-399% FPL
58.5%
400% or more FPL
67.0%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by number of functional difficulties
No difficulties
74.1%
1 difficulty
69.8%
2 difficulties
63.9%
3 difficulties
62.0%
4 or more difficulties
52.6%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need
60.6%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need.
Percentage of CSHCN who are screened early and continuously for special health care needs, by age groups
0-5 years
64.8%
6-11 years
83.8%
12-17 years
80.6%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).
Percentage of CSHCN who are screened early and continuously for special health care needs, by sex
Male
78.5%
Female
78.8%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).
Percentage of CSHCN who are screened early and continuously for special health care needs, by race/ethnicity
Hispanic
74.9%
White non-Hispanic
79.6%
Black non-Hispanic
78.8%
Other non-Hispanic
78.7%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).
Percentage of CSHCN who are screened early and continuously for special health care needs, by primary household language
Hispanic child/English language household
80.3%
Non-Hispanic child
79.3%
Hispanic child/Spanish language household
64.3%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).
Percentage of CSHCN who are screened early and continuously for special health care needs, by household income
0-99% FPL
73.2%
100-199% FPL
75.0%
200-399% FPL
78.6%
400% or more FPL
85.8%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).
Percentage of CSHCN who are screened early and continuously for special health care needs, by number of functional difficulties
No difficulties
79.5%
1 difficulty
81.5%
2 difficulties
79.8%
3 difficulties
76.7%
4 or more difficulties
77.3%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).
Percentage of CSHCN who are screened early and continuously for special health care needs
78.6%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs.
Percentage of CSHCN who can easily access community-based services, by age groups
0-5 years
65.9%
6-11 years
64.8%
12-17 years
65.0%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).
Percentage of CSHCN who can easily access community-based services, by sex
Male
65.4%
Female
64.7%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).
Percentage of CSHCN who can easily access community-based services, by race/ethnicity
Hispanic
59.2%
White non-Hispanic
67.6%
Black non-Hispanic
64.1%
Other non-Hispanic
60.8%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).
Percentage of CSHCN who can easily access community-based services, by primary household language
Hispanic child/English language household
60.2%
Non-Hispanic child
66.3%
Hispanic child/Spanish language household
57.3%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).
Percentage of CSHCN who can easily access community-based services, by household income
0-99% FPL
59.4%
100-199% FPL
59.2%
200-399% FPL
65.6%
400% or more FPL
74.0%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).
Percentage of CSHCN who can easily access community-based services, by number of functional difficulties
No difficulties
86.5%
1 difficulty
81.9%
2 difficulties
74.6%
3 difficulties
66.9%
4 or more difficulties
50.4%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).
Percentage of CSHCN who can easily access community-based services
65.1%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily.
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by age groups
12-14 years
40.7%
15-17 years
39.4%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by sex
Male
37.1%
Female
43.8%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by race/ethnicity
Hispanic
25.3%
White non-Hispanic
45.7%
Black non-Hispanic
28.1%
Other non-Hispanic
40.2%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by primary household language
Hispanic child/English language household
31.6%
Non-Hispanic child
42.4%
Hispanic child/Spanish language household
12.4%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by household income
0-99% FPL
25.4%
100-199% FPL
31.0%
200-399% FPL
43.3%
400% or more FPL
52.2%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by number of functional difficulties
No difficulties
57.4%
1 difficulty
55.7%
2 difficulties
48.3%
3 difficulties
42.0%
4 or more difficulties
28.3%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).
Percentage of families who report their child’s doctors or other health care providers are sensitive to the family’s values and customs
Always
69.6%
Usually
19.3%
Sometimes or Never
11.1%
Source
: National Survey of Children with Special Health Care Needs (2009-2010)
Tip
: *Estimates based on sample sizes too small to meet standards for reliability or precision.
TITLE V PROGRAM
Financing
US
Percentage of Title V Block Grant Partnership Budget from State Funds
42.3%
Source
: U.S. Dept. of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2014)
Tip
: States receive federal funds for Title V activities which they must match at the rate of 75 cents for each federal dollar. Seeing a zero reported for this Catalyst Center state page indicator does not mean the match isn’t being met. Some states’ match comes from local sources other than the state budget. For a fuller picture of the source and amount of both state and local funds that contribute to the Title V block grant partnership, follow the link to “See State Notes for Form 2” in the original source at
https://mchdata.hrsa.gov/tvisreports/FinancialData/FinancialSearch.aspx?FinSearch=A
Family Involvement
US
Family Participation in Title V CYSHCN Program Score (Maximum Possible = 18)
14.2
Source
: U.S. Dept. of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2014)
Tip
: Title V programs are required to conduct a self-assessment and report to the federal government annually on the extent to which they involve families in state program planning, implementation and evaluation. While there is a risk of bias here (high performing states may assess their own performance more rigorously than others) this is one marker of family participation in CYSHCN state-level programs and policies.
* Estimates based on sample sizes too small to meet standards for reliability or precision.
This work was developed with support from the Maternal and Child Health Bureau, Health Services and Resources Administration, U.S. Department of Health and Human Services, under grants #U41MC4494 and #U41MC13618