Coming Soon!

State-at-a-glance Chartbook (online version)

White papers and Technical reports
    Mandated Benefits: Essential to Children and Youth
     with Special Health Care Needs
    Reducing Under-Insurance for Children and Youth with Special
     Health Care Needs through Medicaid Buy-In Programs

Topics

Medical Debt and CYSHCN
Catalyst Center to Examine Financial Hardship on Families

A new Catalyst Center project will assess the scope, causes and consequences of medical debt and related financial hardship among families raising children and youth with special health care needs.

The National Children with Special Health Care Needs Survey and other studies indicate that financial hardship is a common experience of families with children who need health and related services beyond what is typical, and that individuals with disabilities bear a heavy burden of debt.

The Catalyst Center seeks to quantify the scale of financial hardship faced by families, highlight specific causes of debt and financial hardship, and identify the range of consequences of medical debt to families. Steps in this process will include: a national “town hall” phone meeting of families, in-depth family case studies, focus groups held among families in different states to assess specific causes and outcomes of financial burdens, and an analysis combining data from the National Survey of Children with Special Health Care Needs.