External Resources
Use the directory below to find links to other selected resources relevant to the improvement of financing of care for children and youth with special health needs.
Center on Budget Policy and Priorities
Non-partisan research and policy institute that works with federal and state fiscal policies and public programs that affect low- and moderate-income Americans.
Centers for Medicare and Medicaid Services
The Center for Medicare and Medicaid Services is the federal government’s website on Medicare, Medicaid and SCHIP.
Children's Defense Fund
The mission of the Children's Defense Fund is to Leave No Child Behind and to ensure every child a Healthy Start, a Head Start, a Fair Start, a Safe Start, and a Moral Start in life and successful passage to adulthood with the help of caring families and communities.
Child Welfare League of America
A coalition of hundreds of private and public agencies that ensure the well-being of children and youth throughout the United States through public policy.
Community Catalyst
Community Catalyst is a national, nonprofit health care advocacy organization dedicated to strengthening the voice of the health care consumer and building stronger state and regional networks to bring about health policy and system change. The organization works with state, local, and grassroots consumer groups in over 30 states to expand health care access, improve health care quality, and preserve health care resources. Community Catalyst also provides a range of capacity-building services to consumer health advocacy organizations, including policy analysis, legal expertise, community organizing, organizational development, and media outreach.
Cover the Uninsured
Cover the Uninsured provides useful information for those working to reduce the ranks of the uninsured. The site includes a story bank of individuals who have suffered because they lack insurance, a databank of charts on insurance trends, a feature that tracks legislation designed to increase access to health coverage, selected resources for those seeking health coverage, and a glossary of terms.
Family Voices
“Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.”
Georgetown Center for Children and Families
“The Center for Children and Families (CCF) is an independent, nonpartisan policy and research center whose mission is to expand and improve health coverage for America's children and families.
CCF is based at Georgetown University's Health Policy Institute (HPI). HPI is a multi-disciplinary group of faculty and staff that is dedicated to conducting research on key issues in health policy and health services. HPI is affiliated with the University's public policy graduate program (the Georgetown Public Policy Institute).”
Insure Kids Now!
Insure Kids Now! is a national campaign to link the nation's 10 million uninsured children--from birth to age 18--to free and low-cost health insurance.
Kaiser Commission on Medicaid and the Uninsured
The Kaiser Family Foundation web site is a health care policy clearinghouse on a myriad of topics, including health insurance costs, HIV/AIDS, Medicaid and SCHIP (the State Children's Health Insurance Program), Medicare, minority health, prescription drugs, state health policy, the uninsured, and women's health policy. In addition, the site provides an extensive public opinion tracking service.
Below are several useful links from the website:
National Academy of State Health Policy
“The National Academy for State Health Policy (NASHP) is an independent academy of state health policymakers working together to identify emerging issues, develop policy solutions, and improve state health policy and practice.
NASHP provides a forum for constructive, nonpartisan work across branches and agencies of state government on critical health issues facing states. We are a non-profit, non-partisan, non-membership organization dedicated to helping states achieve excellence in health policy and practice.”
“Pediatrics, the official journal of the American Academy of Pediatrics published a special supplemental issue in December 2009 on Building Systems of Care for Children With Special Health Care Needs: Findings From the 2005-2006 National Survey of Children With Special Health Care Needs. You can find an introduction to the supplement as well as the individual articles at http://pediatrics.aappublications.org/content/vol124/Supplement_4/
State Coverage Intiatives
The SCI program is a national initiative that works with states to plan, execute, and maintain health insurance expansions, as well as to improve the availability and affordability of health care coverage. SCI works with states to help them expand coverage to working families, build on employer-based health insurance, and foster collaboration among stakeholders. SCI also provides a variety of hands-on support services that are confidential, nonpartisan, and free of charge.
